Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Thursday, May 7, 2015

Like A Tree Shedding Leaves



Soon the time will come when I can no longer play the recorder.  Well, maybe not soon, but the time will surely come, if I keep on living.  And it seems unfair and sad that, having finally found a way to enjoy playing music, away from the tensions and compulsions of my early experience with the violin, I have only another ten or at most fifteen years in which to do it.  

I went to a memorial the other day for a woman who had lived a life brimming with gardening,  dancing, and art.  She had excelled at all these things, but one by one she had had to give them up--first the gardening, then the dancing, then the art.  By the time I met her she could barely hold a conversation.  She kept shaking her head, apologizing, wanting me to know that she knew what was happening to her.   

How the old apologize!  For a while, in college, I played violin/piano sonatas with an old colleague of my father's.  After a lifetime spent in some exalted music circles, he was losing his grip.  He would forget our appointments, couldn't remember which piece we were playing, lost his place over and over.  And he apologized, and lamented, and insisted on telling me that he knew what was happening to him.  All his pride was focused on his awareness of his decline, on the one thing in the core of his being that was not affected by dementia, not diminished by his inability to find his place on the score or to remember what he had said two minutes ago.  He may have been losing his mind, but he clung fiercely to the awareness that he was losing it—and that was both his torment, and his only consolation.

On my therapy dog visits with Bisou, I watch the various ways in which my fellow Wake Robin residents deal with the myriad losses that age brings, and I feel an urgent need to build a large reserve of humility to see me through the coming years.  I had better make peace with the idea that I am not my writing, or my music, or my hair, or my ability to walk the dog or use the bathroom by myself.  Like a tree shedding leaves in the fall, I will probably live to see each of these abilities leave me, one by one.  How, I wonder, to find a way to do this well, to submit with grace, and to say, with deep acceptance:  yes, this is who I am now?

Tuesday, April 17, 2012

Bluebirds

Right outside my window, in the little nest box that in past springs has sheltered families of wrens, a pair of bluebirds are building their nest.  Blue, orange, and white he perches, exuding authority, on the little apple tree whose leaves are barely unfurling, while his paler, browner wife thrusts beakfuls of stuff into the box.

(Photo:  Ed Cobb)


On the other side of the glass, I talk on the phone with my sister.  We are discussing whether to put an IV into the arm of our dying mother, to hydrate her.  I Google "hydration for late-stage dementia patients" in hopes of guidance, but that girl bird keeps stealing pieces of hay from the blueberry mulch and stuffing them into the nest hole, and I keep looking up from the screen to watch her.

I find the following and cut-and-paste it to my sister who, unlike me, is on the scene:

"Patients at this stage often refuse to eat or drink, even though they are offered food. This is due to the patient's sense of hunger and thirst diminishing as dementia advances. Once families realize that the patients with Alzheimer's Dementia (AD) often do not experience hunger or thirst, they may be able to remove the guilt they feel associated with "starving them to death" and accept the natural progression of end-stage AD. It is also important to explain that patients with poor food and fluid intake who become dehydrated typically do not express pain or discomfort. It is generally believed that dehydration in end-stage dementia is not painful."

Old Lexi limps into the room, dragging her hind legs, and laps at the water bowl.  At least she's not  dehydrated.

Bluebird of happiness, you ornithological cliche, could you have picked a worse time to visit?  Those little brown wrens in their modest clothes would have been far more appropriate for this season.

And yet, the breeze is cool, the air is clear, the evening light is bright.  For an instant, the bluebird is happiness. 

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