On bad days I think of Frida, nailed to her bed by pain, staring up at the ceiling, wondering when her husband, the painter Diego Rivera, a man as round and fat as the sun, would come home, and if he was finished making love to her sister.
She dressed in Mexican folk costumes, partly because the
long skirts hid her polio-withered leg, and decorated herself with chunky necklaces made from broken Aztec beads. She braided her hair with colored wools and piled it on top or her head and put big bows and flowers in it until it looked like an altar to some garish god. She wore all
this while she lay in bed, recovering from one or another
of 30 operations to repair her spine and pelvis, which were broken
in a streetcar accident when she was a girl.
She had a mirror attached to the underside of the bed canopy so she could paint while lying down with her canvas propped up against her knees. Over and over, she painted herself against backgrounds of glossy leaves and
fruits, embraced by monkeys and surrounded by butterflies and parrots, hummingbirds and a little hairless, gray-skinned
Xoloitzcuintle dog.
Critics say that she lacks universality, that her art is only about herself. Prolonged illness turns you inward, and what else can you do while everybody else is out going about their business
but ruminate about yourself? "I paint myself because I am so often alone," she said.
She didn't make it to 50. She died of a clot in her lungs, having recently undergone the amputation of a gangrenous leg, and of the alcohol and pain killers to which she was addicted--though for the latter, who can blame her?
I lie in bed with Bisou asleep on my stomach and wonder, how did Frida keep from getting oil paint all over herself when she painted lying on her back? Were her monkeys and her dog allowed on the bed? With her appalling pain, how did she manage that impressive string of love affairs with men and women, cabaret dancers, movie stars and intellectuals, and were they just a way to get back at Diego?
Most of all I wonder, what kept her going? What reservoir of grit and rage drove this tiny hirsute woman to paint 140 pictures that, even if you don't like them, you will never forget?
She was not a nice person, as she was the first to admit. Yet to me she is a saint of sorts, the patron saint of those whose bodies have betrayed them but who struggle to make their stories be about something more than just that.
Showing posts with label chronic illness. Show all posts
Showing posts with label chronic illness. Show all posts
Wednesday, March 11, 2015
Tuesday, January 3, 2012
A Golden Mean
This is another post about CFS (Chronic Fatigue Syndrome). You should know that it is a good sign when I write about this illness, since when I am in relapse I will do anything to take my mind off it.
I've been thinking lately about how strongly contact with people--or the lack of it--affects my symptoms. On the one hand, when I am not feeling well, nothing tires me more than the human presence. And not all human presences affect me in the same way. I have learned through experience that, regardless of the degree of affection I may feel for them, certain people wear me out, while others don't.
I cannot say that all high-energy people fatigue me, since I find some of them stimulating and revitalizing. Other intense individuals, however, make me feel as if the very marrow is being sucked out of my bones. Nor are all quiet people restful and salutary. I can enjoy quiet/interesting for hours, but the most exhausting encounters are those with quiet/boring, probably because I feel obligated to provide all the fuel for the conversation.
When I am at my worst, the only presences I can tolerate are my spouse--and my dogs.
On the other hand, nothing is more crucial to my mental (and likely also my physical) health than contact with people. Isolation has a depressing effect even on those in the pink of condition. How much more so, then, on people whose illness features depression as one of its foremost symptoms. So I find myself in the curious position of simultaneously desiring human contact, and avoiding it.
The trick is to achieve a balance between social activity and solitude. Sometimes I perform amazing feats of calibration--say, lunch out, then a nap, and a phone conversation in the evening. But both lunch and dinner out on the same day usually spells disaster the next morning.
It would be easier if the planet's inhabitants existed solely to attend to my needs. That not being the case, my friends' schedules and obligations as well as their feelings and preferences complicate my attempts to calibrate my exposure to society.
For the most part, however, I manage pretty well. For one thing, I am now in the fortunate position not to have to confront co-workers on a daily basis. For another, I am comfortable with a degree of solitude that many would find intolerable (that's why I live in Vermont). And I have understanding and flexible friends.
I am just coming out of a period of extraordinary (for me) levels of human contact: a week in the midst of my descendants followed by an explosion of year-end celebrations. And yet here I am, sitting by the fire, writing about it, seemingly none the worse for all the fun. Does it--could it--mean I'm getting better?
I have learned, over the last fifteen years, not to attach to these resurgences. I have read my Buddhist books, and know that I should enjoy these good periods, while at the same time accepting that, like everything else in life, they are transitory.
This is one of the reasons I write about this otherwise boring, disgusting illness: because it distills the conflicts and dilemmas that all humans have to face. The need to balance social life and contemplation, activity and rest. The need to accept that we are more than the sum of our accomplishments. The need to realize that nothing--not the good times nor the bad--lasts forever. And that, while suffering is inescapable, happiness is not out of the question.
I've been thinking lately about how strongly contact with people--or the lack of it--affects my symptoms. On the one hand, when I am not feeling well, nothing tires me more than the human presence. And not all human presences affect me in the same way. I have learned through experience that, regardless of the degree of affection I may feel for them, certain people wear me out, while others don't.
I cannot say that all high-energy people fatigue me, since I find some of them stimulating and revitalizing. Other intense individuals, however, make me feel as if the very marrow is being sucked out of my bones. Nor are all quiet people restful and salutary. I can enjoy quiet/interesting for hours, but the most exhausting encounters are those with quiet/boring, probably because I feel obligated to provide all the fuel for the conversation.
When I am at my worst, the only presences I can tolerate are my spouse--and my dogs.
On the other hand, nothing is more crucial to my mental (and likely also my physical) health than contact with people. Isolation has a depressing effect even on those in the pink of condition. How much more so, then, on people whose illness features depression as one of its foremost symptoms. So I find myself in the curious position of simultaneously desiring human contact, and avoiding it.
The trick is to achieve a balance between social activity and solitude. Sometimes I perform amazing feats of calibration--say, lunch out, then a nap, and a phone conversation in the evening. But both lunch and dinner out on the same day usually spells disaster the next morning.
It would be easier if the planet's inhabitants existed solely to attend to my needs. That not being the case, my friends' schedules and obligations as well as their feelings and preferences complicate my attempts to calibrate my exposure to society.
For the most part, however, I manage pretty well. For one thing, I am now in the fortunate position not to have to confront co-workers on a daily basis. For another, I am comfortable with a degree of solitude that many would find intolerable (that's why I live in Vermont). And I have understanding and flexible friends.
I am just coming out of a period of extraordinary (for me) levels of human contact: a week in the midst of my descendants followed by an explosion of year-end celebrations. And yet here I am, sitting by the fire, writing about it, seemingly none the worse for all the fun. Does it--could it--mean I'm getting better?
I have learned, over the last fifteen years, not to attach to these resurgences. I have read my Buddhist books, and know that I should enjoy these good periods, while at the same time accepting that, like everything else in life, they are transitory.
This is one of the reasons I write about this otherwise boring, disgusting illness: because it distills the conflicts and dilemmas that all humans have to face. The need to balance social life and contemplation, activity and rest. The need to accept that we are more than the sum of our accomplishments. The need to realize that nothing--not the good times nor the bad--lasts forever. And that, while suffering is inescapable, happiness is not out of the question.
Labels:
Buddhism
,
CFS
,
Chronic Fatigue Syndrome
,
chronic illness
,
friendship
,
social life
,
solitude
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